RARE News

RARE News

Dravet Syndrome UK awarded major funding boost to accelerate research into Dravet Syndrome

By CONTRIBUTOR

9 October 2024

RARE News

CMT Research Foundation surpasses $10 Million goal of ENDGAME Capital Campaign

By admin

1 October 2024

RARE News

Sickle Cell Disease Association of America Inc. holds convention in Atlanta

By admin

1 October 2024

RARE News

PSPA invites applications for small research projects looking into PSP & CBD

By admin

24 September 2024

RARE News

13th Annual Getzlaf Golf Shootout raises nearly $500,000 for CureDuchenne, welcoming Troy and Danielle Terry as new hosts

By admin

24 September 2024

RARE News

International Gaucher Alliance celebrates 30 years of international patient advocacy

By Becky Pender

23 September 2024

RARE News

UK LSD Collaborative set to release new short—‘Hadid and I’

By admin

2 September 2024

RARE News

Make your voice heard: Participate in the Rare Barometer Survey on the impact of living with a rare diseases on everyday life

By admin

2 September 2024

RARE News

Sickle Cell Disease Association recognises Sickle Cell Awareness Month

By admin

2 September 2024

RARE News

Exercise is medicine for people living with PSP & CBD

By admin

28 August 2024

RARE News

CureDuchenne expands global initiatives andspreads awareness for World Duchenne Day 2024

By admin

23 August 2024

RARE News

Ladies Luncheon Newport Beach to debut at Shady Canyon Golf Club on October 15 benefiting CureDuchenne

By admin

20 August 2024

RARE News

Introducing the Vascular Voice Network

By admin

12 August 2024

RARE News

PSP Association increases support to families

By admin

12 August 2024

RARE News

Nod to Naz art exhibit opens in California

By admin

9 August 2024

RARE News

Timothy Syndrome Alliance (TSA) looks to recruit Trustee

By admin

2 August 2024

RARE News

CMT Research Foundation invests in project at nationwide children’s hospital to develop improved gene therapy delivery systems for several types of CMT

By admin

1 August 2024

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